Monday, August 3, 2015

Complex Motor Stereotypy or ASD

Everett has some quirk going on in his life.  I became concerned at about 18 months when he stopped using words he had already learned.  Right now he has a vocab of a whopping three words.  I am flattered "mom" is one of them.
In addition to his speech delay and regression there is this hand flapping he does when he is excited. Of course the combination of these two give me pause.  He is scheduled for testing at a pediatric neurologist, but in the meantime he has been having some early intervention and speech therapy.  The consensus is that everyone is perplexed by the enigma that Everett is.  He does not seem autistic due to his empathy, eye contact, affection, and socialization.  However, he's got something going funky in that little brain of his.
I over research and over think everything, so I have had many hours of concern.  It seems as if Everett enters into his own world, far far away, when he starts flapping. I can bring him back to me by calling his name or touching him.  Other adults have described this flapping as a very creative outlet which allows them to enter a space that is fascinated, engrossed and safe.  That is a relief.  Where can I sign up for this? I will go with you Ev.  Flap and fly my pollito.
he was moving his hands and mouth at 6 months...
i just thought he was jazzed about life. 

Friday, July 24, 2015

Most excuses are flimsy at best. Mine as well.

Thank you for the update. I suppose 
it was needed: helping aging parents, 
recording music, traveling, teaching, romancing.
This is all so positive and delightful.  
I am a little dizzy taking it all in right now. 
I am not sure why.

I just moved houses. Again.  
It's a whirlwind in the Vegas summer.
 Maybe that is why I am dizzy.  
The home is in an older area 
a wood burning fireplace, huge pine trees 
that litter my pool by the minute.  
It is a process getting to know a house
we are having quite a fiery relationship so far.  
Our second night the pool pump was stuck by lightening. 

I might have blamed my girl if everything burned, 
it was her prompting and insistence that we move.  
She has two more years living with me 
I admit, I will give that girl anything she wants. 
She seeks a new set of faces to entertain her.  
And a female track coach...the previous ones  
rub me the wrong way. As most people do.

I completed legal work for Vanity Fair. 
Dan, that great guy Dan, gave him my number.  
 Wrongful deaths of Cirque performers. 
That is how the legal work goes right now:
sporadic and upon my choosing.  
Being queen of my army is the focus.  
But, I will take the job that came last night 
a hygienist at the dental office I go to
scammed out of her life savings 
by love on a dating website.  
Ah, love.

Love...then marriage. Congratulations dear. 
That is relevant news. If I make the invite list 
I will be sure to wear something other then black.  
 As marriage was made legal nationwide 
There was felt a tinge of sadness.  Simply because 
some dear friends will now 
experience the interesting conundrum 
that including the state in a love affair can cause.
 Yet, I am old-ishly jaded. Let's celebrate!

Thursday, July 23, 2015

babies, backyards and bottles

"Each second we live is a new and unique moment of the universe, a moment that will never be again. And what do we teach our children? We teach them that two and two make four, and that Paris is the capital of France. When will we also teach them what they are? We should say to each of them: Do you know what you are? You are a marvel. You are unique. In all the years that have passed, there has never been another child like you. Your legs, your arms, your clever fingers, the way you move. You may become a Shakespeare, a Michelangelo, a Beethoven. You have the capacity for anything. Yes, you are a marvel." Pablo Casals

Friday, April 3, 2015

This baby is smiley, bendy (seriously double jointed in 90% of his body), tumbly, and just sweet as sweet can be.  I assume him and Everett will be compared a lot since they are so close in age.  They are two VERY different souls.  Ev is complex, smart and manipulative.  Ezra is gregarious, simple and straightforward.  At the ripe age of one it seems as if I can say that this boy has no guile, nor will he ever.  He is Deacon's spirit baby, and Everett is Deven's.
Ezra is my only child to walk before one.  I was worried about him walking due to his ankles and feet being so super flexible.  He is a champ. He is wandering all over the house and yard, typically following Ev or the dog.  He has a deep gutteral laugh that he gives to his family freely. If you are sitting on the floor he will come bury his head into you and flop his body over you.  Our human lap blanket.  He is so silly in a physical way.
Ezra will tackle Everett in good fun and often win since Ev is more high strung. Ez will take stuff he wants now and will not always let Ev take stuff from him.  The struggle between these two will get more real as the months pass, and I love every minute of them together.
He eats a lot.  2 to 3x more then Everett. I think he eats more then me.  He stopped baby food months ago and loves food.  This morning I was peeling a banana for him, he grabbed the whole thing and within minutes had eaten it all.  The only thing he has not liked was hot dogs.  Those are a no go.
He says the sound "mom" but otherwise has no words.  He can copy me when I click my tongue or clap my hands.
In his car seat he is comatose.  Ev is jazzed and excited looking out the window.  Ezra is slumped over barely alive.  Yesterday Ev kept lifting Ezra's head up off his armrest "sit up fool!"

I look back at last year at this time and it was a bit crazy.  This stage of baby life is sweet and full of heartbursting moments of love and joy.  Ezra is a solid soul.  He is mine, as he should be.

spring breaky

the girl had a track meet at the college in santa barbara, so i combined it all into our vacay.
she took second overall in the 100 hurdles, 100 dash and 4x4 relay; which is fab.  poor nevada kids who think they are great are often humbled by california athletes.  not this girl.
 mexican food at the playa. some clown put celery in my veggie burrito. come on.
church at 9 where it was mainly old people.  i guess they are the only ones who can afford to live in santa b.  then breakfast at Janine's. feeding these people is non stop.
one on one with deven was a segway tour up to montecito.  we segwayed by ty warners house.  crazy wealthy.
 one on one with deacon was the zoo.  baby giraffe nursing from its mom, ahhh.  i feel ya momma.
this gorilla was AMAZING. freaked me out a little, but we spent a long time right at the glass with this guy.
feeding lettuce to Michael...this is by far the most enjoyable zoo experience i have ever had.  it is still sad and unnatural.  but this kid and i had a blast.
char and i did one on one at the salt caves. it was cool. we got a couples massage in a salt cave. i don't like the inside of my ears or armpits massaged so that was a buzz kill, but otherwise we enjoyed ourselves. we also found her a prom dress. 

the girl drove home. we played the name game. sang real loud to some random songs. i would call it all a success.

Thursday, March 26, 2015

this myth of a unified self...i can't

 march was exciting, as you can tell from everett's pose #aerosmith
 there was a lot of car time due to all the activities #macrubywoo
 there was some very sick time #3AMemergencyroom
 there was a lot of little boy time and they made the living room into a permanent four square arena #justsocksontilecauseinjuries
 some scout stuff for deven #heloveshismom
 mall time with grandma to get gifts for the birthdays this month #kissylips
 physical therapist time because her shins are being problematic #iamnotconvinedthishelps
basketball wrapped up #tallgirlscanhelp
 then the next day soccer started #slickhaircut
she turned 16 #traditionalbirthdaytable
we had a legit party that annoyed the HOA and wrecked the house #75teenagers
 the next morning was an early invitational #alwaysfirstplace
 that afternoon we hosted the Sadies group #zachhymas
 some mornings i have to feed them all at the same time outside #earthing 
 deven spends so much time with his little brothers cuz he worries about moving out when they are so little and them not remembering living with him. #deepthinker
some more sick time with high fevers  #crazymomonWebMD
then this guy had a first birthday #burieshisheadalot
after all the parties, sick, events and living i cleaned the house. then made the boys eat outside to keep it clean
...for at least like an hour. #sweatsinmoderationdeven

Wednesday, February 25, 2015

a day in life

how much are we all pretending that stuff matters? like it is even of minuscule value if charly raises her grade in chemistry, deacon practices piano, i figure out how to use this sony camera before the first track meet? it does not matter. that pressing fact keeps me disengaged from many aspects of living. but, the soft white skin of these babies...i could snuggle that all day everyday. no lie.

my god, just love. love others. love hard. love well. 
(love the long necked people and the no neck people all the same)
the rest is dross.

Tuesday, February 24, 2015

San Fran with the big littles part 2

 Love when the girl Snapchats me without me knowing. (my Torts professor always said facts are like pennies you attention to them and you will be rich. This snapchat was making fun of me for being excited about the ferry ride.)
Lunch at the Rotunda at Neiman Marcus.  The popover and strawberry butter was a hit. (Hidden fact: the ring on her necklace is from her 17 year old boyfriend, her hair is in a bun cuz it is humid in San Fran and she was having hair issues, the boy is wearing two bracelets from Chinatown cuz that is his traditional souvenir; bracelets, his hair is not done cuz he forgot to pack all personal hygiene stuff: no gel, no toothbrush, ya know.)
Dev finally decided what he wanted to order.  That kid and his food this trip was hilarious. "I'd like the crab mac and cheese without the crab."  = $24 mac and cheese. Come on.
 Trolley rides. Lots of them. (He sharpied Chinese symbols on his arm the night before)
 Tourist heart photo.
 MLK Waterfall memorial.
After a brisk walk through the back alleys of Chinatown. These two were clowning the whole time and did not argue. It was a tender mercy inspired by my threats.  
It was a fabulous trip. I did not even get anxiety about not being with the babies.  That was a huge win.  I am thankful for my brother who took Deacon to the monster truck show in Salt Lake while we were gone, and my sweet mom who watched the babies.  She really took one for the team when she got stung by a scorpion in the house that Ezra had just crawled past. Hey, universe...what is the point of being 74 and getting stung by a scorpion? 

Saturday, February 21, 2015

San Fran with the big littles part 1

We made it and immediately grabbed lunch at Mocca on Maiden Lane.  Tri-tip sandwiches and Italian sodas while live jazz musicians were playing.  A fab Valentines day lunch. (this is a cool filter that makes your lips white and adds black spots to your face.)
Union Square was sunny and warm to browse the art.  There was this cute mermaid painting where the mermaid was drinking coke while saying "I hate salt water."
 Britex fabrics to find momma some sweet velvet to recover some chairs.
Valentines night dinner at the Cathay house in China Town. I asked them if they wanted to try dim sum.  Charly replied "isn't that illegal?!" So we just had sweet n'sour. It was a'right.
 Foot massages at some sketchy reflexology joint on Grant street. She swore it healed her shin splints. Dev abstained and just played his phone.
 In the morning they slept...and I read.
 Down to the Wharf for mini donuts.
Then onto the ferry boat ride under the Golden Gate and around Alcatraz.  We did not go in the prison, that is something to do when you are older and more boring.
We biked across the Golden Gate instead.

...more to come. 

Friday, January 2, 2015

Everett Lee

I have a little shadow that goes in and out with me,
And what can be the use of him is more than I can see.
He is very, very like me from the heels up to the head;
And I see him jump before me, when I jump into my bed.

The funniest thing about him is the way he likes to grow--
Not at all like proper childen, which is always very slow...

 "My Shadow"  Robert Louis Stevenson

This boy turned two.  He is a gift that came to me when I was least deserving.  He has healed and grounded our family in such a profound way. 
His eyes have changed from his original deep blue to a crystalline blue green.  Those eyes gazed at me while he was an infant and still often stare at my eyes in communication. He arrived with unique personality that has grown so comedic he dominates most of the photos on my camera roll. His strong will makes the theory of child redirection obsolete. He cannot be persuaded to any other path then the one he has his mind set to at the moment.  This trait leads to many tantrums and much frustration since I have to thwart many of his ideas. (here I had taken away my iphone...tragedy)
  As much as I am his buzz kill, I am his delight.  He is a finicky friend to even his family and will not keep company with many of them unless he decidedly is in the mood, however, he is always game for his mom.  He is always game for his dog.  He loves dogs and has a best buddy in his dog Cooper.  He enjoys his dog way more then he enjoys his baby brother. For now.
Everett is so intelligent.  He understands English very well, but has yet to speak much of it.  He says mom, hot, up, apple, hello there and deven.  However, his communication is exacting even without words.  If I have the baby in my arms he will wave his grandma over and motion for her to take the baby so I can hold him.  
Our park play dates always have him immediately leaving the pack of kids to wander on his own.  He likes climbing the big dirt hill by the park, or throwing dirt from the flower pots out front, or digging in the dirt out back.  He also loves balls and can throw very well and hard.  
His appetite is small and he prefers fresh fruit and meat over any typical kid foods.  He will spit out macaroni and cheese, potato foods or pasta and say "uck." However, I think he has developed a taste for dog food as he will often enjoy a shared meal of kibble with Cooper.
Thirteen year old Deven has become very fond of him and he prefers Deven over any of his siblings. Most mornings I walk into Deven's room to find Everett in bed sleeping on Deven's chest.  Ev loves 8 year old Deacon, but Ev bullies him around.  Deacon's sweet personality is dominated by this demanding two year old. After spending the day with Everett, my sister in law sent me an article in a parenting magazine "Raising a Strong Willed Child -- It is not a Bad Trait." 
When she thought no one was listening the other day, my mom expressed to Everett, as he was clowning, "I hope I get to see you grow into an adult, because you will be a unique man."  We all look forward to each day with you kid.  You are a force to be admired.